Posts in Cystic Fibrosis
A Day In My Life With Cystic Fibrosis

For anyone who doesn’t know, cystic fibrosis is a genetic disorder of the pancreas that basically causes all of the mucus linings in the body (especially the lungs and digestive system) to be super thick and sticky. It makes our lungs a stellar breading ground for bacteria and other infections, and makes things like sinus infections and the common cold potentially life-threatening.

Here’s a look inside my daily life with cystic fibrosis.

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Cystic Fibrosis: Death and Dying

When I was in high school, the reality of my life potentially being half over hit me hard. I remember feeling so angry and hopeless. Frankly I was pissed that my life could be half over and I still had to go to high school. What a waste of time! Right? I understand the fear and frustration that comes with having a shorter life expectancy. I remember literally wanting to wear a paper bag over my face 24/7, avoiding talking to almost everyone at school, and trying so hard to be the nicest person I could be when I did have to interact with others. I didn't want to leave behind any pain when I died. 

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